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Where to Learn More About Hunter Syndrome

Advocacy Groups

The Canadian Society for Mucopolysaccharide (MPS) and Related Diseases

The Canadian MPS Society is committed to providing support to individuals and families affected with MPS and related diseases, educating medical professionals and the general public.

The International MPS Network

The International MPS Network is the official body of patient associations representing MPS and MPS Societies at a European and global level. IMPSN provides support and advocacy for Hunter Syndrome patients worldwide.


EURORDIS is a non-governmental patient-driven alliance of patient organizations representing more than 510 rare disease patient groups in 48 countries.

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MPS Day 2017

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