When you’re looking after a child with Hunter syndrome, life can probably feel challenging at times.
You can’t always make problems go away. Or you can help manage a problem or provide support. You can also better understand a problem, break it down into different parts and see if some of those parts are solvable, so it becomes easier to live with. Addressing a problem in a step-by-step way can help you feel more in control.5 The activity below supports you to do this.
This technique gives you steps to help you work through a situation and come up with a plan to manage it. It involves:
- Understanding what the problem is
- Thinking of solutions
- Choosing a solution
- Putting it into action
If you feel stuck, it can help to talk through the steps with someone else.
They might help you come up with ideas you haven’t thought of. Sometimes other’s perspectives can help us see from a different angle, and even just talking about it can help us hear ourselves and come up with new ideas. You could go through this activity with a nurse, a family member, or a friend. You can grab a pen and note the steps down on a piece of paper or print out the activity sheet.
- Harris, R. Embracing your demons: An overview of acceptance and commitment therapy. Psychotherapy in Australia. 2016;12(4),2-8.
- Coyne LW, McHugh L, Martinez ER. Acceptance and commitment therapy (ACT): advances and applications with children, adolescents, and families. Child Adolesc Psychiatr Clin N Am. 2011;20(2):379-399.
- Zeng X et al. The effect of lovingkindness meditation on positive emotions: a metaanalytic review. Frontiers in Psychology. 2015;6:1693.
- Aspy DJ, Proeve M. Mindfulness and loving kindness meditation. Effects in connectedness to humanity and the natural world. Psychological Reports. 2017;120(1):10217.
- Law, E et al. Psychological interventions for parents of children and adolescents with chronic illness. Cochrane Database Syst Rev. 2019;3(3):CD009660.